ارتباط بین کیفیت زندگی مراقبین خانوادگی با سرمایه‌ی روان‌شناختی بیماران مبتلا به Multiple Sclerosis

نوع مقاله : مقاله های پژوهشی

نویسندگان

1 دانشجوی کارشناسی، گروه اتاق عمل، دانشکده‌ی پرستاری و مامایی، دانشگاه علوم پزشکی اصفهان، ایران

2 گروه مامایی و بهداشت باروری، دانشکده‌ی پرستاری و مامایی، دانشگاه علوم پزشکی اصفهان، ایران

3 مربی، گروه پرستاری سلامت جامعه و سالمندی، دانشکده‌ی پرستاری و مامایی، دانشگاه علوم پزشکی اصفهان، اصفهان، ایران

4 استاد، گروه داخلی اعصاب، دانشکده‌ی پزشکی، دانشگاه علوم پزشکی اصفهان، اصفهان، ایران

چکیده

مقدمه: Multiple sclerosis (MS) یک بیماری مزمن سیستم عصبی مرکزی می‌باشد که بر تمام جنبه‌های اقتصادی، مالی، اجتماعی و عاطفی فرد، خانواده و جامعه اثر می‌گذارد. پژوهش حاضر، با هدف تعیین ارتباط بین کیفیت زندگی مراقبین خانوادگی با سرمایه‌ی روان‌شناختی بیماران مبتلا به MS انجام شد.روش‌ها: این مطالعه‌ی توصیفی- تحلیلی از نوع مقطعی، با انتخاب 95 نفر از بیماران MS و مراقبین آن‌ها (در مجموع 190 نفر) مراجعه کننده به کلینیک MS بیمارستان الزهرای (س) اصفهان به روش آسان و در دسترس انجام شد. ابزار جمع‌آوری داده‌ها شامل مشخصات دموگرافیک، کیفیت زندگی و سرمایه‌ی روان‌شناختی بود. پس از جمع‌آوری داده‌ها، اطلاعات با استفاده از نرم‌افزار SPSS و شاخص‌های آماری توصیفی و تحلیلی تجزیه و تحلیل شد.یافته‌ها: میانگین نمره‌ی کیفیت زندگی مراقبین 7/52 و میانگین نمره‌ی سرمایه‌ی روان‌شناختی در حیطه‌های خودکارآمدی، امیدواری، تاب‌آوری و خوش‌بینی، به ترتیب 2/25، 5/19، 6/19 و 3/21 گزارش شد. بین نمره‌ی کیفیت زندگی مراقبین با نمره‌ی سرمایه‌ی روان‌شناختی و حیطه‌های آن در بیماران MS ارتباط معنی‌داری وجود داشت (05/0 > P).نتیجه‌گیری: مطالعه‌ی حاضر، بیانگر وجود ارتباط بین کیفیت زندگی مراقبین خانوادگی مبتلایان به MS و سرمایه‌ی روان‌شناختی بیماران بود. در نظر گرفتن کیفیت زندگی مراقبین بیماران و رابطه‌ی آن با سرمایه‌ی روان‌شناختی بیماران، جهت بهبود سیر درمان، مراقبت و مداخلات مؤثر در راستای بقا و بهبود بیماران مبتلا به MS اهمیت دارد.

کلیدواژه‌ها

عنوان مقاله [English]

Association between Family Caregivers’ Quality of Life and Psychological Capital of the Patients with Multiple Sclerosis

نویسندگان [English]

  • Saeideh Rahnema 1
  • Zahra Baghersad 2
  • Maryam Shirazi 3
  • Ahmad Chitsaz 4
  • Masoud Etemedifar 4
1 BSc Student, Department of Operating Room, School of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran
2 Department of Midwifery and Fertility Health, School of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran
3 Instructor, Department of Community Health Nursing and Elderly, School of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran
4 Professor, Department of Neurology, School of Medicine, Isfahan University of Medical Sciences, Isfahan, Iran
چکیده [English]

Background: Multiple sclerosis (MS) is a chronic disease of central nervous system, which affects economic, financial and emotional aspects in individuals, families and the society. The present study aimed to investigate the association between family caregivers’ quality of life and psychological capital of the patients with MS.Methods: This is a descriptive analytical cross-sectional study, conducted on 95 MS patients and their caregivers (total of 190 subjects) referring to MS Clinic of Alzahra hospital in Isfahan, Iran, who were selected through convenient sampling. Data collection tool was including demographic characteristics, quality of life and psychological capital. After data collection, the obtained data were analyzed by descriptive and analytical statistical tests through SPSS software.Findings: The results showed that caregivers’ mean score of quality of life was 52.7. Mean score of psychological wealth in domains of self-efficacy, hope, tolerance and optimism were 25.2, 19.5, 19.6 and 21.3, respectively. There was also a significant association between caregivers’ score of quality of life and MS patients’ score of psychological capital and its domains (P < 0.05).Conclusion: The present study showed an association between MS patients’ family caregivers’ quality of life and MS patients’ psychological capital and its four domains among these patients. Consideration of MS patients’ family caregivers’ quality of life and its association with patients’ psychological capital is of great importance to facilitate their recovery, care and administration of efficient interventions to help their survival and recovery.

کلیدواژه‌ها [English]

  • Quality of Life
  • caregiver
  • Psychological capital
  • Multiple Sclerosis

مراجع

  1. Smeltzer SC, O'Connell B, Bare BG. Brunner and Suddarth's textbook of medical-surgical nursing. 10th ed. Philadelphia, PA: Lippincott Williams and Wilkins; 2003. p. 4350.
  2. Halper J, Holland N. Comprehensive nursing care in multiple sclerosis. 3rd ed. New York, NY: Springer; 2010.
  3. Soltani M, Hejazi SM, Noorian A, Zendedel A, Ashkanifar M. The Effect of selected aerobic exercise on the balance improvement in multiple sclerosis patients. Evid Basic Care 2009; 9(2): 107-13. [In Persian].
  4. Shahbeigi S. Press conference of 7th International Congress of Multiple Sclerosis. Mehr News [Online]. [cited]; 2010 Nov 4; Available from:
  5. http://www.mehrnews.com/news/1178598/
  6. Masoodi R, Mohammadi E, Nabavi S, Ahmai F. The effect of Orem based self-care program on physical quality of life in multiple sclerosis patients. J Shahrekord Univ Med Sci 2008, 10(2): 21-29. [In Persian].
  7. Multiple Sclerosis Association of Iran [Online]. [cited]; 2010. Available from: http://www.iranms.ir/
  8. Soltani M, Hejazi SM, Noorian A, Noorian A, Zendedel A, Ashkanifar F. The effect of aerobic training on the improvement of expanded disability status scale (EDSS) in multiple sclerosis patients. Journal of Medical Science of Islamic Azad University of Mashhad 2009; 5(1): 15-20. [In Persian].
  9. Bakhshaei N, Khosravi M, Rafiei M. The cognitive function of patients with MS. Proceedings of the 3rd Congress of Iranian Association of Psychology; 2011 Mar 1-3; Tehran, Iran. [In Persian].
  10. Beirami M, Hashemi T, Mashinji N, Sadeghizadeh M. System activation/inhibition of behavior and personality factors in patients with MS. Proceedings of the 3rd Congress of Iranian Association of Psychology; 2011 Mar 1-3; Tehran, Iran. [In Persian].
  11. Anami Aladari H, Moslempour M, Hashemi T. The role of personality factors in the prediction of psychological capital. Proceedings of the 3rd Congress of Iranian Association of Psychology; 2011 Mar 1-3; Tehran, Iran. [In Persian].
  12. Agha Yousefi A, Shaghaghi F, Dehestani M, Barghi Irani Z. The relationship between quality of life (QOL) and psychological capital with illness perception in ms patients. Journal of Health Psychology 2012; 1(1): 32-45. [In Persian].
  13. Forohar M. The rise of positivism in work. Tadbir 2013; 24(252): 35-8. [In Persian].
  14. Navidian A, Bahari Zahedan F. Burden experienced by family caregivers of patients with mental disorders. Pakistan Journal of Psychological Research 2008; 23 (1): 19-28.
  15. Boyd MA. Psychiatric nursing: Contemporary practice. Philadelphia, PA: Lippincott Williams and Wilkins; 2005.
  16. Heidarzadeh M, Ghahremanian A, Hagigat A, Yoosefi E. Relationship between quality of life and social support in stroke patients. Iran J Nurs 2009; 22(59): 23-32. [In Persian].
  17. Luthans F, Youssef CM, Avey JB. Psychological capital organization. Trans. Jamshidian A, Forohar M. Tehran, Iran: Aeej Publication; 2013. [In Persian].
  18. Hashemi Nosrat Abad T, Babapur Kheyroddin J, Bahadori Khosroshahi J. Role of psychological capital in psychological well-being by considering the moderating effects of social capital. Social Psychology Research 2012; 1(4): 123-44. [In Persian].
  19. Scheier MF, Carver CS, Bridges MW. Optimism, pessimism, and psychological well-being.Washington, DC: American Psychological Association; 2001. p. 189-216.
  20. Khanjari S, Oskouie F, Langius-Eklof A. Lower sense of coherence, negative religious coping, and disease severity as indicators of a decrease in quality of life in Iranian family caregivers of relatives with breast cancer during the first 6 months after diagnosis. Cancer Nurs 2012; 35(2): 148-56.
  21. Keighobadi S, Neishabouri M, Haghighi N, Sadeghi T. Assessment of quality of life in caregivers of patients with mental disorder in Fatemie hospitals of Semnan city. J Nurs Midwifery 2013; 22(79): 36-44. [In Persian].
  22. Habibzadeh H, Jafarizadeh H, Mohammadpoor Y, Kiani P, Lak Kh, Bahrechi A. A survey on quality of life in hemodialysis patient care givers. J Urmia Nurs Midwifery Fac 2009; 7(3): 128-35. [In Persian].
  23. Jalili N, Godarzi M, Rassafiani M, Haghgoo H, Dalvand H, Farzi M. The influenced factors on quality of life of mothers of children with severe cerebral palsy: A survey study. J Mod Rehabil 2013; 7(3): 40-7. [In Persian].
  24. Fleischmann H, Klupp A. Quality of life in relatives of mentally ill people. Psychiatr Prax 2004; 31(Suppl 1): S114-S116. [In German].
  25. Caqueo-Urizar A, Gutierrez-Maldonado J. Burden of care in families of patients with schizophrenia. Qual Life Res 2006; 15(4): 719-24.
  26. Sajjadi H, Roshanfekr P, Asangari B, Zeinali Maraghe M, Gharai N, Torabi F. Quality of life and satisfaction with services in caregivers of children with cancer. Iran J Nurs 2011; 24(72): 8-17.
  27. Ahangari M, Kamali M, Arjmand Hesabi M. Quality of life of elderly members of the Cultural Center in Tehran. Salmand Iran J Ageing 2007; 2(3): 182-9. [In Persian].
  28. Chen PS, Yang YK, Liao YC, Lee YD, Yeh TL, Chen CC. The psychological well-being and associated factors of caregivers of outpatients with schizophrenia in Taiwan. Psychiatry Clin Neurosci 2004; 58(6): 600-5.
  29. Bahadori Khosroshahi J, Hashemi Nosratabadi T, Bayrami M. The relationship between psychological capital and personality traits with job satisfaction among librarians' in public libraries in Tabriz. Pejouhandeh 2013; 17(6): 313-9. [In Persian].
مجله دانشکده پزشکی اصفهان
دوره 34، شماره 377 - شماره پیاپی 377
خرداد و تیر 1395
صفحه 335-340

فایل ها

سابقه مقاله

  • تاریخ دریافت: 28 مهر 1394
  • تاریخ بازنگری: 11 آبان 1403
  • تاریخ پذیرش: 17 فروردین 1401

هم رسانی

ارجاع به این مقاله

آمار