Journal of Isfahan Medical School

Journal of Isfahan Medical School

Essential Features of Cerebral Aneurysm Disease Registries in Selected Countries: A Comparative Descriptive Study

Document Type : Original Article(s)

Authors
Mahdi Khakizadeh 1
Somayeh Nasiri 2
Seyed Shahab Ghazi Mirsaeed 3
1 MSc of Science student in Health Information Technology, Department of Health Information Management, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran
2 Assistant Professor, Department of Health Information Management, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran
3 Assistant Professor, Department of Neurosurgery, School of Medicine, AJA University of Medical Sciences, Tehran, Iran
10.48305/jims.v44.i863.0805
Abstract
Background: A cerebral aneurysm is a localized dilation or protrusion of the arterial wall in the brain caused by weakening of vascular structures. Its rupture can lead to subarachnoid hemorrhage and severe neurological complications. Structured and systematic documentation of patient information is essential for monitoring disease patterns, improving treatment management, and supporting health policy planning. This study aimed to identify and compare the main characteristics of cerebral aneurysm registries in selected countries.
Methods: This qualitative comparative study was conducted in 2025 using a descriptive approach. Key features of cerebral aneurysm registries in Greece, China, Switzerland, Germany, and the United States were examined through scientific literature, official documents, and credible online sources. Data analysis was performed using comparative tables, enabling the identification of shared characteristics and differences across registry components.
Findings: The features of the cerebral aneurysm registry were identified across nine key dimensions—introduction, objectives, patient eligibility criteria, structural design, evaluation and quality control methods, reporting procedures, presentation and dissemination strategies, data analysis capabilities, and data security measures—comprising a total of 48 distinct components.
Conclusion: Significant differences were identified among the selected countries with respect to registry design, technological infrastructure, data collection processes, and analytical capacity. Multicenter and prospective registry models showed better performance in analyzing treatment trends and predicting clinical outcomes. Developing a national cerebral aneurysm registry in Iran requires a precise understanding of successful global registry models and a thorough examination of other countries’ experiences regarding system features.

Highlights

Somayeh Nasiri: Google Scholar , PubMed 

Seyed Shahab Ghazi Mirsaeed: Google Scholar ,PubMed

Keywords
Intracranial Aneurysm
Subarachnoid Hemorrhage
Registries
Features
Data Management
Subjects
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Journal of Isfahan Medical School
Volume 44, Issue 863
3rd Week, July
July and August 2026
Pages 805-812

  • Receive Date 28 September 2025
  • Accept Date 25 July 2026